TAUNTON — For the eighth year in a row, a “family-fun day” fundraiser will be in the burghal for the account of a adolescent California babe with Taunton ancestors ties who has lived with a ache that her mother said has rendered her about “paralyzed.”
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For about her absolute life, 10-and-a-half-year-old Aubriana “Aubri” Navarro has lived with analgesic able-bodied atrophy, according to her mother, Shellie Lopes, who said that her brother-in-law has already afresh organized the fundraiser for her daughter’s benefit, this year at the Portuguese-American Civic Club on Aug. 11.
Lopes said that Aubri was diagnosed with SMA back she was 4-and-a-half months old and at the time, doctors said that they did not apprehend her to alive accomplished the age of two.
“Based on their prognosis, doctors aloof told us to booty her home and adulation her as abundant as we could and that she wouldn’t alive accomplished the age of two,” said Lopes.
“Before, they said that there’s no analysis and no cure, but now there’s a treatment.”
Today, Lopes said that Aubri is still “very fragile, but actual stable,” and currently receives what she was told is the best big-ticket analysis on the bazaar for SMA, best of which is covered by insurance.
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The purpose of the treatment, alleged “chain” neural therapy, is to advice activate and change the motor neurons impacted by SMA, Lopes said.
Aubri has appear a continued way back her diagnosis, her mother said, abacus that she believes she may not accept survived if it had not been for her accommodation to arbitrate aboriginal on during her medical care.
“She’s so able at 10-and-a-half, and annihilation bothers her. She aloof goes with the breeze and lives how we should all be active — demography anniversary day one at a time and with happiness,” she said.
Lopes said that at first, doctors gave her three options: either to accord Aubri morphine and “let her go peacefully,” acquiesce her to use a BiPAP chase or abide a tracheostomy to install a tube, the closing of which the adolescent babe still uses to this day, best chiefly to accumulation oxygen to her brain.
Although Aubri cannot move on her own and is wheelchair bound, Lopes said that SMA does not affect her brain, acceptation that she is still acquainted of what is activity on about her.
“The alone acumen she survived is because we intervened to accommodate her respiratory care. If not for that, there’s no way she would accept lived,” Lopes said.
“Right now, we’re absolutely not afraid about the approaching (of her health) like we already were.”
The gain from the Taunton fundraiser, Lopes said, will be acclimated as they consistently accept in contempo years, to advice pay for Aubri’s abroad medical accompanying expenses.
At this year’s accident — appointed at the P.A.C.C from apex to 6 p.m. on Sunday, Aug. 11 — attendees are encouraged to accompany ancestors associates and accompany of all ages to bolt Joe’s Crazzy Critters, accept beam tattoos and see a achievement from Criminals and Beauty Queens.
Though Lopes comes to appointment ancestors associates in Taunton back she can, including her brother-in-law, Michael Boulanger, she said that advancing out anniversary year to appear the fundraiser does not necessarily advice her daughter’s cause.
Still, Lopes said she wishes she could appear every year and is beholden for annihilation those in the Taunton association are accommodating to accord to advice her daughter — admitting actuality added than 3,000 afar away.
“It’s aloof a great, fun ancestors day that additionally allowances Aubri. It defeats the purpose if we go, because we would about be spending the money on the tickets to fly over from California,” she said.
“Any dollar helps out, and if you were to go and all you capital to do was to buy some raffle tickets — the cardinal of air-conditioned things that get donated for that is aloof amazing.”
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